Posted On: February 17, 2017
I was studying in my school and just had the loss of my beloved father who passed away due to severe pulmonary embolism and severe PHT. The loss was big but we managed to cope up and live the rest of our lives happily. My lupus fight story begins on the day when I was writing for my tenth standard board exam. Suddenly, I felt pain and tenderness in the palm where I was holding the pen and writing my papers. Six months went normal and again I felt pain and swelling in my ankle when I went to the nearby clinic rather I was rushed to as I could not walk. The doctors were confused and finally, he sent me to a hospital nearby.
There a pulmonologist examined me and arranged for series of tests. It took 2 days for the reports to come. I and my mother were in the hospital. The doctor was initially silent and told us in a low voice that I have a problem and I need admission. The rheumatologist came to the hospital as a visiting doctor and prescribed me injection through IV for steroids, anticoagulants and other medicines. I was 16-year-old timid girl at that time. I didn’t even know what my illness was. I had the medicines on time and gained some weight and got discharged from the hospital.
However, in 2007 the wolf attacked me again. I browsed the internet and learned about my illness; SLE APLA syndrome. This was the title written on all my prescriptions. I entered my college in 2006 and in 2007 I noticed severe pain in my toes, feet and I literally could not take a single step to walk. I was rushed to Apollo hospital Chennai in the wheelchair. The doctor prescribed me 3 days of Solumedrol injection with 1000 mg each day through Intravenous injection.
I was in the middle of my semester exams that time. My body was in complete pain and I struggled to bear it with patience. I shouted in pain became angry. Within 1 week, my body and face became fluffy I lost my hair and I was sent to a vascular surgeon again. He explained me about my clotting disorder and told me I have severe vasculitis and this could be because of my Deep Vein Thrombosis (DVT). My INR value should be tested periodically and maintained between 1 to 2.
The struggle continued. However, I gained some confidence and started smiling through the tears. In 2008, I started getting crying spells and panic attacks. I consulted a psychiatrist as well. Yes, I was put on a lot of anti-depressants and mood boosters. I had a tough time sleeping and all my pillow got wet with my tears.
In 2010, I successfully finished my graduation in Biomedical engineering. I was on cloud nine about my success in spite of these hurdles. I got a job in a multinational company. Needless to say, my family kept me motivated at every stage. I have gone through a lot of ups and downs. I fell down many times and got up with the courage to fight.
In 2013, I suffered breathlessness and was rushed to a hospital. The diagnosis came as pulmonary hypertension and embolism. I was put on IVC filter to prevent clots from spreading to the lungs. That was the hardest phase of life when I started losing complete faith. Thoughts about my dad, how he fought with all his willpower and then finally left us alone, stroke me. He has been my hero for me from my childhood days and I got the same illness which he fought. I decided not to end this lupus fight story here. We lost one life already and I would become a warrior. Though under a lot of stress and weakness, my positivism was creeping as well. It’s not gone yet. However, positivism is inside all of us. We just need to awaken it all the time.
In 2014, I met my partner. My soul mate. His love and support introduced me to a new life with new hopes. Why will I suffer anymore with such lovable husband? Yes, we got married in 2015 and still, the fight with Lupus is on but with even higher spirit.